The Captain's Charity for 2021 - Motor Neurone Disease Vision A world free from MND Mission Statement We improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. We campaign and raise awareness so the needs of people with MND and everyone who cares for them are recognised and addressed by wider society. Values People with MND, their families and carers are at the heart of everything we do. We collaborate, and value everyone’s contribution. We achieve excellence through personal commitment and ongoing improvement. We respect and respond to people’s diverse needs, backgrounds and views. We achieve our aims through building open and transparent relationships. As Lady Captain, Senior Captain and Club Captain want to support this charity as a joint effort in any way we can over the next 12 months.
What are the basic facts? Motor neurone disease (MND) describes a group of diseases that affect the nerves (motor neurones) in the brain and spinal cord that tell your muscles what to do. Select from the following for basic facts about the disease. With MND, messages from the motor neurones gradually stop reaching the muscles. This leads the muscles to weaken, stiffen and waste. MND can affect how you walk, talk, eat, drink and breathe. Some people also experience changes to their thinking and behaviour. However, MND affects everyone differently. Not all symptoms will affect everyone, or in the same order. Symptoms also progress at varying speeds, which makes the course of the disease difficult to predict. MND is life-shortening as there is no cure. Although the disease will progress, symptoms can be managed to help achieve the best possible quality of life. There is a 1 in 300 risk of getting MND across a lifetime. It can affect adults of any age but is more likely to affect people over 50. MND affects up to 5,000 adults in the UK at any one time. As this is not a common disease, general health and social care professionals may not see many cases of MND. This means it is important to seek out specialists who have appropriate experience in its treatment and care – usually with referral to neurological services. Changes to thinking and behaviour are usually mild, but a small number of people with MND may develop frontotemporal dementia, which is more severe and needs additional care support
During the year we will be holding event to help raise money, with different events, competitions hopefully a Captain’s Charity Ball in July and a music event in September, raffles and we know as Captain’s our members will get behind us as they always have done in the past. Thank you in advance,
Michael Whitehouse, Club Captain Barbara Pritchard, Lady Captain Barrie Morgan, Senior Captain
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